perez jolles 2017 involving latino parents in research the mpg.pdf
Mónica Pérez Jolles
Maria Martinez
San Juanita Garcia
Gabriela L. Stein
Mentor Parent Group Members
Kathleen C. Thomas
10.25376/hra.6483629.v1
https://hra.figshare.com/articles/journal_contribution/perez_jolles_2017_involving_latino_parents_in_research_the_mpg_pdf/6483629
<p>Background: Comparative effectiveness research (CER) is
supported by policymakers</p>
<p>as a way to provide service providers and patients with
evidence-based information to</p>
<p>make better health-care decisions and ultimately improve
services for patients. However, Latina/o patients are rarely involved as study
advisors, and there is a lack of documentation on how their voices contribute
to the research process when they are included as collaborators.</p>
<p>Objectives: The purpose of this article was to contribute to
the literature by presenting concrete contributions of Latina/o parent
involvement to study design, implementation and outcomes in the context of a
CER study called Padres Efectivos (Parent Activation).</p>
<p>Methods: Researchers facilitated a collaborative
relationship with parents by establishing a mentor parent group. The
contributions of parent involvement in the following stages of the research
process are described: (i) proposal development, (ii) implementation of
protocols, (iii) analysis plan and (iv) dissemination of results.</p>
<p>Results: Mentor parents’ contributions helped tailor the
content of the intervention to their needs during proposal, increased
recruitment, validated the main outcome measure and added two important outcome
measures, emphasized the importance of controlling for novice treatment status
and developed innovative dissemination strategies.</p>
<p>Conclusions: Mentor parents’ guidance to the researchers has
contributed to reaching recruitment goals, strengthened the study protocol,
expanded findings, supported broad ownership of study implications and enriched
the overall study data collection efforts. These findings can inform future
research efforts seeking an active Latino parent collaboration and the timely
incorporation of parent voices in each phase of the research process.</p>
2018-06-29 18:36:09
stakeholder collaboration
Latino
Public Health and Health Services not elsewhere classified